We have great news! our association AELALD has become part of ELPA (European Liver Patient Association), the European association of liver disease patients.

On June 24, 2022, we attended the ELPA annual assembly, in which we had the opportunity to explain what it means to live with Lysosomal Acid Lipase Deficiency (LAL-D) and what actions our association has carried out since its creation.

ELPA emerged from a desire amongst European liver patient groups to share their experiences of the often very different approaches adopted in different countries. In June 2004, 13 patient groups from 10 European and Mediterranean Basin countries met to create the association. ELPA was formally launched in Paris on April 14th 2005 during the annual conference of the European Association for the Study of the Liver (EASL) and now has 31 members from 25 countries.

Rare diseases related to the liver have a working group in which we will be involved. There we will publicize the work that our group of experts is doing and with the help of ELPA, we will continue working to learn more about the disease, achieve an early diagnosis and promote research.